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The push for medical marijuana in Georgia

10:56 AM, Jan 21, 2014   |    comments
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(WXIA) -- As adorable as he could possibly be, 3-month-old Kason Jiles is in the fight of his life.

"It's just awful to watch," said Kason's father, Jonathan Jiles. "It's that dire. This is a life and death situation."

Kason is one of many children across the state hoping for a change in law to allow medical marijuana to control the dozens of seizures the boy has daily.

"Kason has tonic seizures," said Jonathan. "And, tonic seizures last between 20 seconds and a minute in length."

We caught up with his father just outside Children's Healthcare of Atlanta. His mom stayed at Kason's bedside.

"It's just very difficult to watch 10 to 25 at times -- the worst day that we've had so far, 74 seizures -- 74 in one day -- 74 seizures," said Jonathan.

"Kason is diagnosed with Ohtahara syndrome," he said. "Most of the Ohtahara patients, their life span is about two to three years. That's the general life expectancy for a child with Ohtahara syndrome."

Many Georgia families are left with no other option but to move to a state that allows medical marijuana to be given to children to lessen their seizures.

"I do not have the ability to move to Colorado and everything that I have is here," he said. "My church is here - my support team is here."

Georgia representative Allen Peake (R-Macon), spent time with Kason.

He's hoping to help families like the Jiles by pushing to legalize medical marijuana here in Georgia.

"If it was my child or grandchild and this was the only remedy that helps with a medical condition, I'd be pushing as hard as I can," said Rep. Peake.

Jonathan is just hoping other lawmakers will feel the same way.

"Something really needs to be done and something needs to be done now," said Jonathan.

For updates about Kason and his condition, please visit his Facebook page: http://facebook.com/kasonjilesupdates.

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